Project Information

Assessing Patient Handbook Utilization and Outcomes in Neurosurgery

Project Description: This project aims to optimally provide patient education using a patient-centered approach. It focuses on coordinating and integrating care, while communicating expectations, and educating relevant information to facilitate autonomy and self-care in an attempt to alleviate fear and anxiety for patients, family, and friends. We plan to do this by assessing healthcare professionals’ effectiveness of providing patient education by linking patient education to patient outcomes. In January 2016, our department formed a Patient and Family Advisory Council (PFAC) in which a representative sample of current and former patients and caregivers shared their experiences in a focus-group format and consulted on improvement opportunities monthly. All PFAC members shared the needed improvement for patient education. Specifically, the PFAC requested that a consolidated patient educational reference was available to patients and caregivers. From that PFAC, our team created a Neurosurgery Patient Handbook (handbook) that informs patients and caregivers what to expect across their journey of care as a Neurosurgery patient. It includes pre-, intra-, and post-operative sections, as well as medication reconciliation, follow-up care, and notes. Each page has our department’s direct phone number and other institutional details such as maps, related services, and a materials’ pocket holder. The handbook was created by Health Education and Behavior experts with careful attention to written grade-level, reading-ease, and health-literacy. Standard methods and assessment metrics, include Flesch-Kincaid, were utilized. Moreover, the handbook was vetted by seven stakeholder groups, including residents, faculty, nurses, staff, PFAC members, marketing, and legal.

QPI: Janelle, Alongi, (

Collaborators: Daniel, Hoh, (; Jacqueline, Baron Lee, (; Janelle, Alongi, (; David, Shin, (

Advisors: Jacqueline, Baron Lee, (

UF Health Big Aims: Reduce Variation None

MeSH Keywords: